Overwhelmed

Photo of my hand, writing on a spiral bound journal; next to it, a coffee cup with a peace sign on it.
This is not what I wanted to write.

I was actually planning to write a blog this week (yes, I know, it’s been over a year – I’ve wanted to, a lot, but … well … life gets in the way).  But this week was actually 5 years since I was first (finally) diagnosed with sarcoidosis, and I wanted to write about what that diagnosis has done for me, and how much my life has changed since then.

But alas, life gets in the way.
More accurately, #SarcLife gets in the way.

While people around the world have been hunkering down at varying levels due to the pandemic, those of us with chronic illnesses like sarcoidosis, arthritis, and thousands more have had to take more drastic measures due to our compromised immunity and higher risk for not only contracting COVID-19, but more severe outcomes if we do.  My primary doctor’s way of putting it to me: “the only thing we have right now is extreme social distancing [and masks, and hygiene], and for you, that means extra extreme.”  For many of us, in addition to avoiding social situations and switching to shopping online whenever possible, that also meant postponing non-emergency medical appointments.  That’s kind of a tricky thing, though, because the main way many issues stay non-emergency is that we maintain routine monitoring & care.  Additionally, it’s one thing when these issues get held off for a month or two (like we initially thought corona would last); when it’s looking more like a year or more, that is really too long to wait.