There's a saying, "when you hear hoofbeats, think horses, not zebras." The idea is that we should look for the simplest explanation for things. But for people with rare diseases, that simple explanation doesn't cut it. That's why the zebra has become a symbol for rare diseases.But did you know ...
A group of zebras is called ... get this ...
a dazzle!
So when we get together, we literally dazzle4rare!
What is Dazzle4Rare?
Founded in 2016 by Kimberly Thomas Tague, #Dazzle4Rare is an awareness campaign held annually during the last week of August. Individuals and organizations representing the undiagnosed and rare disease community sign up to share not only their own disease information but messaging from the other co-hosts, as well. By amplifying each other's voices, we are able to raise greater awareness, and extend our reach to those in need.
Who's Dazzling?
In 2022, our Dazzle4Rare Co-Hosts included:
Angelina Cask Neurological Research Foundation - ACNRF | CURED Foundation | NCBRS Worldwide Foundation - |
Action for MdDs UK | Diagnosed with Destiny | PIP - UK Poland Syndrome Support |
Addison's Disease Self Help Group | Float Like a Buttahfly | Rare Disease Connection |
Alex TLC - The Leukodystrophy Charity | Flutters and Strutters | Rare Patient Voice |
Ataxia and Me | Gastroparesis: Fighting for Change | Rare Revolution Magazine |
ausEE Inc. | Gynecological Cancer Social Media - GYNCSM | Rare Special Powers |
Beacon for Rare Diseases | Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance - HESA | Rare Youth Revolution |
Cambridge Rare Disease Network - CRDN | International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) | Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) |
Caring Hands Sarcoidosis Foundation | International Pain Foundation | United Advocacy Australia |
Central Pain Nerve Center #TheIntractables | Male Lupus Warriors NonProfit Corporation - | United Porphyrias Association |
What's Happening?
Participants are encouraged to dazzle in any & every way! Some past events have included Facebook and Instagram Live chats, Twitter chats, special blog posts, columns, articles, podcasts ... anything you can do to raise awareness - just include #dazzle4rare so we can share your work too!
Join Us!
Visit us on Facebook, Instagram, TikTok, & Twitter all at @dazzle4rare or #dazzle4rare
And visit the main Dazzle4Rare website at dazzle4rare.net
Questions? Contact me at kerry@dazzle4rare.net or D4R at info@dazzle4rare.net.